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Are GP's unwittingly sharing your data?

Hina Pandya photo
Hina PandyaLondon, UK
Are GP's unwittingly sharing your data?
As many as 26million patients may have their medical records shared beyond NHS staff 'enhanced data sharing' from GP practices UK wide.

Think about the last time you went to the GP something very personal, very embarrassing. Stuff you wouldn't share with your friends at the local pub, or perhaps even with your mother?

You might be interested to know then, that the clinical management system widely used in GP surgeries in the UK, that patient records could be compromised as a result of 'enhanced data sharing' features in its software.

a software package that reportedly makes it available far and wide, including to people not directly associated with the patient, is simply a bad idea, as is the facility for patients to access their own data across the internet.”

One-in-three GP surgeries use the SystmOne software, managing the medical records of as many as 26 million patients, privacy campaigners criticised the company for the data sharing feature that, they claimed, could enable NHS staff from outside the surgery to access individual patient records.

From a report in the Inquirer.net it seems there is a discrepancy between the BMA IT committee, the medConfidential campaign group, and the paid for corporate TPP/SystmOne.

Well now consider that that data might be shared with a non-medical person just going through the NHS records system.
Phil Booth privacy campaigner from medConfidential a campaign group said;

"This is a truly devastating breach, which involves millions of patients' GP records - for some, the most deeply personal, sensitive and confidential data about them - being exposed to hundreds of thousands of people, with no mechanism to prevent them if any of them chooses to look,"

Data protection is a concern, many GP practices nationwide would be at risk of breaching laws with this new technology, including the large fines that come with such a breech.

Too late then for the DeepMind Google AI project that partnered with the Royal Free London NHS Foundation in Hampstead, London, allowed access to private medical records of hundreds of thousands of patients. A academic paper said it was 'inexcusable' people weren't told how their data would be used, and had serious 'inadequacies' including an absence of oversight.

In a joint statement the Royal Free and Deep Mind said that the report was misrepresentative. SystmOne parent company TPP too are adamant that there is no breech of data protection, their spokes person told INQ'

"The only story that exists here is that, as stated by the spokesperson from the Information Commissioner's Office, the ICO, NHS Digital, NHS England and TPP are in ongoing discussions over TPP's sharing model and how best to support data controllers whilst balancing the interests of the patient,"

When two sides- the non-profit and for profit are at odds, it deserves investigation, what would a campaign group have to gain from causing issues to sharing health data which may save lives? When a corporate about to make a lot of money on an ongoing contract to be vehement at dismissal on any hint they might be breeching privacy, instead of openly discussing strategy- they admit it’s ongoing so one might assume their ‘enhanced data sharing’ needed challenging, else large problems will ensue.

Lee Munson from Comparitech – a tech support advisory company says
"Given the sensitive (nature of our medical records) –, should it fall into the hands of insurers or bad actors, valuable ... a software package that reportedly makes it available far and wide, including to people not directly associated with the patient, is simply a bad idea, as is the facility for patients to access their own data across the internet.”

Be very careful where your data goes, else at the pub your friends might know more about your body’s ailments and private life than you wanted them to know, but worse so would the people who would exploit you and your family, and this information would be sold on, and on.

#GPs data sharing, #Enhanced data sharing, #Google DeepMind, #AI, #Comparitech, #NHS England, #medConfidential, #Data protection, #TPP, #SystmOne

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